Do you notice that it’s when your hair is shedding or right before a shed.The thing I found interesting about the Wikipedia definition was this part “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain.” That is definitely an explanation.Another theory is that people who have this condition (sometimes called “ponytail syndrome”) have super-sensitive nerves in their scalp.” I wish I could help you figure out a definite cause, but I just don’t know. I try to massage my scalp, and it feels good as I’m doing it or as someone else is massaging it for me; but after the massage is done, it hurts even more; the tenderness, the itch, and the burning sensation increased. I have to say I’m very stress out right now due the hair loss…so this could be the cause too. I had an anxiety disorder way before TE came along.
Elle – Do you still continue to have the burning and itchiness?In the hairloss forums I’ve read of so many people that have had scalp pain and hair loss. My hair has been falling out like crazy this week – I’ve been flying and travelling in a new climate. I’ve always had scalp burning/stinging/itchiness since I lost my hair, but I know a lot of people with Totalis that have no problems at all.I don’t know if that can make it worse, but I get balls of hair coming out every few hours. Does anyone know why it would be different for people with the same condition?: S Jeni – Sorry to hear that you’ve been going through a shed this week particularly when you’re traveling.Shedding is horrible anytime it occurs, but for me I always find it even more troublesome when I’m traveling and away from home, probably because I’m outside my comfort zone.